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The other day at Harpoon Harry’s, waitress amiga Cathy told me that waitress amiga Tereza Gendron (photo) has DERMATOMYOSITIS.
From Wikipedia, the free encyclopedia
|Classification and external resources|
Dermatomyositis (DM) is a connective-tissue disease related to polymyositis(PM) that is characterized by inflammation of the muscles and the skin. While DM most frequently affects the skin and muscles, it is a systemic disorder that may also affect the joints, the esophagus, the lungs, and, less commonly, the heart.
The cause is unknown, but it may result from an initial viral, bacterial, or cytoplasmic infection (even after treatment or cure of the infection). In cases that follow closely after pregnancy, some research suggests an immune response to lingering fetal cells still circulating in the mother becoming an immune response against the parent, resulting in chronic autoimmune activity. Regardless of the trigger, dermatomyositis may behave as a systemic autoimmune disease. Many people diagnosed with dermatomyositis were previously diagnosed with infectious mononucleosis, Epstein-Barr virus, Chlamydia pneumoniae, psittacosis, and other types of infections. Some cases of dermatomyositis actually “overlap” (i.e. co-exist with or are part of a spectrum that includes) other autoimmune diseases such as Sjögren’s syndrome, lupus, scleroderma, or vasculitis. Because of the link between dermatomyositis and autoimmune disease, doctors and patients suspecting dermatomyositis may find it helpful to run an ANA - antinuclear antibody – test, which in cases of a lupus-like nature may be positive (usually from 1:160 to 1:640, with normal ranges at 1:40 or 1:80 and below).
An American citizen now, Tereza was born and grew up in the Czech republic. Cathy told me that Tereza is taking time off to go back there to get a second opinion. When Tereza then came by where I was eating breakfast, I told her that I was so sorry to hear of her trouble. Then, I burst into tears and wept off and on throughout my breakfast. Cathy later gave me a flyer for a fundraiser for Tereza, this evening at the Bottlecap Lounge (small bar) on Simonton Street, 4-11 p.m.
Tereza is not rich, donation$ needed. And, you can drop off a donation at Harpoon Harry’s, or mail it C/O Tereza, Harpoon Harry’s, Caroline and Margaret Streets, Key West 33040.
I long felt I would like to visit the Czech Republic because its President Vaclav Havel
was the country’s poet laureate.
Havel was the ninth and last president of Czechoslovakia (1989–1992) and the first president of the Czech Republic (1993–2003). He wrote more than 20 plays and numerous non-fiction works, translated internationally.
My dream of visiting the Czech Republic is being fulfilled in a different way:
When I burst into tears, Tereza was put inside of me, and I inside of her, so the physical and soul roots of her illness can be treated.
This sort of thing has happened a number of times before with other people. I have no conscious control over it, and by and by I am made aware of what has happened.
I have felt really rough since just before I learned of Tereza’s trouble; it’s a mean disease, at all levels. I know not whether there will be a physical and soul amelioration, or just soul help. I’m the processing plant, the angels are the doctors.
I bumped into Monroe County Mayor Emeritus Shirley Freeman
near Harpoon Harry’s yesterday, and we talked some about the Peary Court redevelopment hearing this evening before Key West’s Historic Architectural Review Committee (HARC) in Old City Hall. Shirley said she likes what I have been writing about Peary Court, and she asked if it was I who had described the “affordable housing” barracks as Auschwitz? I said, after someone else had said it looked like a prison, I said it looked like a concentration camp and Auschwitz came to mind.
It will blend nicely with the quaint cottages and exquisite homes and guesthouses on Angela Street, which pretty well represent the original architecture in Old Town Key West.
Below is a report from an Angela Street Peary Court neighbor, which Arnaud and Naja Girard published in the current issue of Key West the Newspaper – www.thebluepaper.com – followed by my responsive grumbling (previously published at this website), and then by a reply from one of the developer’s hired guns, and then by more grumbling.
White Street Partners is sneaking in under the radar…again… with a new plan to develop Peary Court. With the exception of two 8 inch by 10 inch placards affixed obscurely to the existing Peary Court fence, there has been NO notice given to the public regarding their highly evolved plans to create an unprecedented 24 acre “Olde Towne” development at Peary Court. There has been NO official notice in anything of record, NO articles in the local newspapers, NO mention on radio or TV or the internet, NO meetings with the general public as promised last year when their original plans were shut down. And yet, on this coming Monday evening at 5:30 PM at the Old City Hall on Greene Street, HARC will review this massive proposal and make a decision to give it the green light. I’m not kidding. This whole proposal, one shot by HARC, this Monday night.
How can this be? How can a project of of this scale in the middle of and at the gateway to Old Town get so far with so little oversight?
In a last minute meeting this Sunday arranged at great effort by Meadows residents with WSP representatives (Donna Bosold, formerly of HARC, and Jim Hendricks, formerly face man for Pritam Singh at Truman Annex), we were shown only small scale plot plans of their new proposal. They felt the architectural drawings were too complicated for them, and certainly for us, to understand, and were therefore deliberately with held.
It appears that everything existing, including all roads and infrastructure will be ripped out. It will replaced with an all new road and a perimeter fortress type layout of maximum density and minimum setback and screening. There will be 160 new “high end dwellings”, plus 20 additional “cottages”, tight to White and Angela Street, both of which will become walls of of houses and swimming pools. The developers are refusing to reveal the total number of bedrooms proposed, but it is clearly far more than currently existing. At the Eisenhower end, between Palm and Angela up to Pearl Street, there will be an immense 48 unit building complex (possibly a low income housing gulag–not integrated into the rest of the development) and large parking lot, pool, and gigantic water tower. Renderings of these structures, which we were finally able to view at City Hall, are particularly shocking in both size and scale. It looks like a prison camp. All this to become the first face of Old Town to travelers headed into town on Palm Ave.
Openings will be made in the existing Angela Street fence, allowing the new Peary Court residents to access and park on an already overburdened Angela Street, Florida, Georgia, and Newton Streets. A new traffic entrance will be created at Fleming Street, and in a particularly bizarre development, the existing entrance from Palm Ave will be closed off, forcing all residents to use White Street, either traveling further on Palm or cutting through the Meadows.
Perversely, the interior of the development will be relatively open and free, almost park like. The density of the housing, and the noise of the common areas, is being foisted on those of us on the perimeter, not screened inside or even along the more indifferent Palm Ave. corridor.
Not to mention the fact that the construction phase of this project will be TEN YEARS. That’s right, ten years of noise, debris, dirt and dust on the scale of the Roosevelt Blvd project for everyone in the vicinity to endure.
HARC has never adjudicated a project of anywhere near this scale. Their mission, and their ability, is to review one building at a time, not 24 acres worth. They cannot green light this project on Monday night. This requires much more attention and due scrutiny, as this is the largest buildable parcel left to developed in Old Town Key West.
If you care about Old Town, or about any of the issues such a massive project like this entails, talk to your fellow citizens, city commissioners, and town planners. Above all, attend the HARC meeting this Monday at 5:30 and let your thoughts be known.
701 Florida St
The proposed new Peary Court architecture will be a perfect compliment to Angela Street and Old Town, if you graduated from WalMart Architecture College – right Curtis and Leroy?
I told Tom Milone the other day at Harpoon Harry’s that my definition of affordable housing is, a waitress can afford it. I doubt any of the Harpoon Harry’s waitresses will be able to afford the “affordable housing” the developer intends to build at Peary Court.
Naja Girard responded to the Stephen Freer/Tugboat Tilly part of yesterday’s so much for resting on the Sabbath in Key West … post at www.goodmorningkeywest.com:
the sunk Tilly, links to the two blue paper articles
Naja and Arnaud Girard, publishers of Key West the Newspaper – www.thebluepaper.com
Naja responded to the Stephen Freer/Tugboat Tilly part of yesterday’s so much for resting on the Sabbath in Key West … post at www.goodmorningkeywest.com:
I DID NOT SAY that it was not Arnaud who went out and rescued Freer. Yes IT WAS Arnaud who rescued Freer. It was ARnaud who called the Coast Guard. It was Arnaud who spent his own money on fuel and on purchasing anchor lights and installed them after he heard that someone had almost run into the Tilly. You hear Arnaud’s voice in the video that we posted – the video that Arnaud filmed. How do you think we even got that video? No, I did not say that we heard that maybe the person who rescued Freer might have helped him skuttle the boat.
Where did you come up with that? We need to be more accurate. What I said was: I’m hearing that the new theory [to clear the Marina of wrongdoing] is that Freer skuttled the boat on purpose and Arnaud and I beleive that is absurd. [See below]
About Freer’s arrest at our house: In case no one has noticed – Key West is a small town. Arnaud is known by many people and Freer may have gotten info from someone on the street that Arnaud has that big house on Eaton. He was hanging out at the library. He spends a lot of time online. He could have easily gotten the info online. You’re correct. We have helped out homeless people. We sometimes invite friends [typically boaters we have known for decades] into our home when they’re having a rough time. We did not invite Freer into our building on Eaton where we have ongoing constuction and multiple tenants.
I’ve been checking into Freer. He was arrested for threatening to blow up a building in Madison, Wisconsin. Another person put out a restraining order against him there…
Now, can we talk about why FWC thinks they even have an OPTION of letting the Marina and staff off the hook [Key West Citizen article today]? Does the derelict vessel statute only apply to SOME people and not others on some sort of willy nilly basis? Is FWC going to ignore the Marina’s culpability in favor of pinning the costs on the taxpayers? There is such a thing as joint-culpability.
One takes on responsibility when undertaking the tow of a vessel. The tower needed to finish the tow or pay someone else to do it. They failed to complete the tow and they had several days to figure out how to accomplish that before the storm came in. There is no mooring field on the west side of Fleming near Man O War harbor – those are not moorings – those boats are on privately owned ground tackle. Tilly didn’t have adequate ground tackle – where was the Marina going to put that boat – even if they had finished the tow? Where at Fleming Key could they have put it where it would not have endangered other boaters with the inadequate ground tackle they had brought with them? The City’s Mooring Field on the east side of Fleming does not accept vessels the size of Tilly. There was no legitimate point “B” for that tow and they should have known that and they should not have involved themselves with bringing it offshore. They needed to wait for a court order and they would have been wise to make sure that whatever happened next in removing the boat from their dock was out of their hands. They screwed up.
And what about the 45 foot wooden sailboat that is now sunk not far from Tilly? Is FWC investigating the marina on Stock Island that put that boat in the water after sellling the sinking craft to a novice – Sonia? Are the taxpayers going to pay for that too? Someone could have died. Had it broken loose before Sonia left it she would likely have drowned out there along with her son and her dogs. Our government should be making it clear to everyone that they should not become involved with sending a derelict vessel out to sea.
The only way I will believe that Freer sunk that boat on purpose is if someone shows me who brought him out there to do it and then I’ll need to see physical evidence of the sabotage. Did Freer swim out there with a little hand drill and drill holes in the bottom of the steel hull and then swim back? Give me a break! And who would have taken him out there to commit such a crime? That boat didn’t need skuttling to sink – we showed that in our video. Did you see the gaping holes in the floor at midship in the video taken while the vessel was still docked at Safe Harbor [where it was sold]? Tilly was fine at the dock for years – then it was taken out and left in open waters with gaping holes in its deck and a storm came through. The deliberate sinking theory is absurd. But go ahead and prove me wrong [whoever you are that came up with that theory]. I’m all ears.
I wrote back:
Naja, if there is a new theory, that Freer scuttled the boat, then you heard that theory somewhere, yes? You and I talked about that theory, and that Freer would have needed help scuttling the boat, someone would have had to take him out there at the very least, if he had no way to get back out there. I agreed with you that theory didn’t seem right, as the Tilly was ready to sink all along.
Sorry, I got it confused that Arnaud did not rescue Freer. Which, alas, makes the trespass aspect all the more confusing for me – sorry about that, too.
Given what I have heard about Freer so far, it does not surprise me to hear he has a violent record elsewhere. As I wrote the other day, his being in jail and maybe going to prison seems fitting, not for the trespass, but for the reckless endangerment to others a la Tugboat Tilly.
I can’t argue with your comments re Fish & Wild Life and who ought to get tagged with derelict boats, instead of Monroe County and its taxpayers, except, as I have said to you before and written, in the case of Tugboat Tilly, you and Arnaud emailed the county commissioners what was going to happen to the Tilly and they ignored you, and commissioner Neugent blasted you and Arnaud in a reply email about your warning, and, well, that don’t leave me feeling the commissioners and the county should skate free from the Tilly. When they did nothing, they became accomplices, so to speak, and whatever that ends up costing the county government and the county taxpayers is on them politically, since they cannot be held personally responsible for that cost.
Maybe (probably I won’t hold my breath) the Tilly incident will lead to changes, which, if they had been in place already, would have prevented the Tilly incident and other derelict boat incidents. Maybe it’s right and just that you and Arnaud were given the additional task of taking Freer out of circulation, perhaps for a good while, after Arnaud saved his sorry ass.
Once, I gave a young woman about to be homeless refuge in my trailer on Little Torch Key, when I lived in it in 2006. She started being a pain in the butt, started accusing me of being mean to her, she didn’t like some of my observations about her, she called the Sheriff in on me, she was trying to get me evicted from my own home, she refused to leave, I had to get eviction papers filled out, and when the deputy came by I got him to witness them, which freaked her out, and shortly after that the angels got involved further and she had a dream that freaked her out and she was sort of apologizing, and then she was gone, with enough money from me, as per the angels, to tide her over a little while on the mainland, where she needed to be to get away from her family in the Keys. She was a good friend of Bicycle Joanie Nelson of Marathon, who had introduced her to me.
No good deed goes unpunished.
Dump the Pumps, Inc.’s Attorney Lee Rohe replied to the grinder pump part of yesterday’s so much for resting on the Sabbath in Key West … post at www.goodmorningkeywest.com:
Thanks for the input. It is wise counsel.
Thanks, Lee, looked to me they needed a swift kick in the hind end, or several swift kicks; maybe it got them out of the hand-wringing and complaining stage. Guerrilla warfare often can be quite effective, where conventional warfare is not. The Russians learned that in Afghanistan. Maybe Uncle Sam is learning it there, and in Iraq, but maybe not, since he did not learn it in Vietnam. Miss seeing you sometimes at the Looe Key Tiki Bar, but Key West sure does have its own attractions. Sloan
Political advertisement paid for and approved by Sloan Bashinsky, for Mayor of Key West, although Lee, Naja, Arnaud, Shirley and lots of other people down this way know I write this sort of daily drivel regardless of whether I am running for a public office; writing down these bones is about the same now for me as breathing, eating, going to the bathroom, sleeping, dreaming … zzzzzzzz